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cHRONIC DISEASE SURVEILLANCE AND RESEARCH BRANCH (cdsrb)

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California Parkinson's Disease Registry

California Health and Safety Code (HSC) 103870-103870.2 requires healthcare providers diagnosing or providing treatment to Parkinson's disease patients to report each case of Parkinson's disease to the California Department of Public Health beginning July 1, 2018.  The Richard Paul Hemann California Parkinson's Disease Registry (CPDR) is a statewide population-based registry that will be used to measure the incidence and prevalence of Parkinson's disease. 

Surprisingly, little is known about how Parkinson's disease is distributed among different population groups and whether the patterns of disease are changing over time.  California's large and diverse population makes it ideal for providing important information about this disease.  CPDR will expand our understanding of Parkinson's disease to ultimately improve the lives of those affected.


PROGRAM UPDATE (February 5, 2020):  The California Parkinson's Disease Registry (CPDR) has now received 222,279 records since mandated reporting began on July 1, 2018. It is important to note that the number of records reported to the registry does not represent the number of individuals with Parkinson's disease in California. CPDR is continuing to process registry data, including de-duplication of case records and other quality control measures.

The next deadline for data submission is March 30, 2020, and will include patient encounters through December 31, 2019. If you are a provider and have not yet submitted case information to the registry, it is not too late. CPDR will continue to accept case reports from previous reporting periods, along with case reports for the current reporting period. Mandated reporting will continue through January 1, 2021.

 

New:

The California Parkinson's Disease Registry (CPDR) Guide to Reporting is available for download.  This document is an update to the CPDR Implementation Guide (version 3, 2018). The updated Guide to Reporting includes data submission deadlines for 2020. In addition, Section 4.4 has been updated to help clarify the onboarding process based on feedback CPDR received over the past year.

Skip to main contentThe California Parkinson's Disease Registry (CPDR) Guide to Reporting (January 2020). 

 

Data Submission Deadlines for 2020:

?Date of Patient Encounter ?Submission Deadline*
?October 1 - December 31, 2019 ?March 30, 2020
?January 1 - March 31, 2020 ?June 29, 2020
?April 1 - June 30, 2020 ?September 27, 2020
?July 1 - September 30, 2020 ?December 27, 2020
?October 1 - December 31, 2020 ?March 30, 2021

*Note:  CPDR will continue to accept case reports from previous reporting periods.

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